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Mental Retardation / Down Syndrome

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Speaking For Ourselves

Model. 13 groups. Founded 1982. Self-help advocacy for people with developmental disabilities. Monthly chapter meetings. Members help each other resolve problems, gain self-confidence and learn leadership skills. Chapter development guidelines and newsletter.

Write:

Speaking for Ourselves

714 Market Street, Ste 326

Philadelphia, PA 19106

Voice: 1-800-867-3330 or 215-923-8600

Fax: 215-923-8601

Website: http://www.speaking.org

E-mail: info@speaking.org

Verified: 2/12/2013

The Arc

National. Over 700 chapters. Founded 1950. Provides support for people with intellectual and developmental disabilities and their families. Advocacy groups and direct services. Monthly e-newsletter. Chapter development guidelines. Local group information on website.

Write:

The Arc

1825 K Street NW, Ste 1200

Washington, DC 20006

Voice: 202-534-3700

Fax: 202-534-3731

Website: http://www.thearc.org

E-mail: info@thearc.org

Verified: 1/10/2013

People First

Model. 30 groups in Washington. 7 high school clubs. Founded 1977. Self-help advocacy organization created by and for people with developmental disabilities. Provides help in starting new chapters. Monthly e-newsletter called Chapter Chatter.

Write:

People First of Washington

P.O. Box 648

Clarkston, WA 99403-2079

Voice: 509-758-1123

Fax: 509-758-1289

Website: http://www.peoplefirstofwashington.org

E-mail: pfow@clarkston.com

Verified: 2/7/2013

VOR - Speaking Out for People with Intellectual and Developmental Disabilities

National. 130 affiliated groups. Founded 1983. Works to empower families of persons with intellectual and developmental disabilities through information and advocacy. Weekly e-mail updates and print newsletter for members. Networking, information and referrals, advocacy, phone support and conferences. Annual dues $40.

Write:

VOR

836 S. Arlington Heights Rd., #351

Arlington Heights, IL 60007

Voice: 1-877-399-4867

Fax: 605-499-1631

Website: http://www.vor.net

E-mail: thopp@vor.net

Verified: 1/15/2013

Down Syndrome and Autistic Spectrum Disorder

Online. 1400+ members. Founded 1997. Opportunity for families and professionals to discuss the unique aspects of supporting a person who is dually diagnosed with Down syndrome autism spectrum disorder.

Website: http://groups.yahoo.com/group/ds-autism

E-mail: ds-autism-owner@yahoogroups.com

Verified: 1/23/2013

Regard Online

Online. Founded 1989. A UK-based organization of LGBT people who self-identify as disabled. Follows the social model of disability. Offers information, advice (on a non-professional basis) and social contact for members through online groups. Provides advocacy and campaigns on issues affecting disabled LBGT people. Provides online newsletters, news and notices.

Write:

BM Regard

London, UK WC1N 3XX

Website: http://www.regard.org.uk or http://facebook.com/#!/group.php?gid=131451632773 and http://uk.groups.yahoo.com/group/regardonline

E-mail: secretary@regard.org.uk

Verified: 1/9/2013

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