National. 285 chapters. Founded 1951. Mutual support for persons who have heart disease, their families, friends and other interested persons. Quarterly magazine and chapter development kit.

Write:

Mended Hearts

8150 North Central Expressway, M2075

Dallas, TX 75206

Voice: 1-888-432-7899 or 214-296-9252

Fax: 214-296-9252

Website: http://www.mendedhearts.org

E-mail: info@mendedhearts.org

Verified: 9/9/2011

National. 54 affiliated groups. Founded 1987. Assists individuals suffering from mitral valve prolapse syndrome and dysautonomia to find support and understanding. Education on symptoms and treatment. Newsletter and literature.

Write:

National Society MVP and Dysautonomia

880 Montclair Rd., Suite 370

Birmingham, AL 35213

Voice: 205-592-5765 or 1-800-541-8602

Fax: 205-592-5707

Website: http://www.mvprolapse.com

E-mail: staff@mvprolapse.com

Verified: 10/20/2011

International. 23 affiliated groups. Founded 1991. Provides support and education to patients, families and friends about mitral valve prolapse syndrome. Newsletter, phone support, literature, conferences and support group meetings. E-publishes 'Survival Guide.' Offers guidelines to start similar groups.

Write:

Soc. for MVP Syndrome

P.O. Box 431

Itasca, IL 60143-0431

Voice: 630-250-9327

Fax: 630-773-0478

Website: http://www.mitralvalveprolapse.com

E-mail: bonnie0107@aol.com

Verified: 9/12/2011

National. 3 affiliated groups. Founded 1985. Mutual support for families and adults affected by congenital or acquired heart defects. Also provides bereavement services. Matches parents together for support, referrals to local support groups nationwide. Promotes public awareness of congenital heart defects. Books, awareness products, advocacy assistance and assistance in starting groups.

Write:

Kids With Heart NACHD, Inc.

1578 Careful Dr.

Green Bay, WI 54304

Voice: 1-800-538-5390 or 920-498-0058 (voice/fax) (Mon.-Fri., 8am-3pm CST)

Fax: 920-498-0058 (voice/fax)

Website: http://www.kidswithheart.org

E-mail: michelle@kidswithheart.org

Verified: 8/22/2011

National. Founded 1998. Seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Education, outreach, advocacy and promotion of research. Online information and webinars, peer-to-peer support and national conferences.

Write:

Adult Congenital Heart Association

6757 Greene St., Ste. 335

Philadelphia, PA 19119

Voice: 1-888-921-2242 or 215-849-1260

Fax: 245-849-1261

Website: http://www.achaheart.org

E-mail: info@achaheart.org

Verified: 2/17/2012

International. 5 affiliated groups. Founded 1992. Works to save the lives of young persons who are predisposed to sudden death due to cardiac arrhythmia. Offers networking, newsletter, literature, advocacy, information, phone support and referrals.

Write:

SADS Foundation

508 E. South Temple, Ste. 20

Salt Lake City, UT 84102

Voice: 1-800-786-7723 or 801-531-0937

Fax: 801-531-0945

Website: http://www.stopsads.org

E-mail: sads@sads.org

Verified: 10/4/2011

Online. Founded 2000. Regular exchange of messages, listserv and newsgroup. Chat meetings. E-mail pen pal program to support new members. Offers support, information and encouragement in a fun and interactive environment. Also provides information on local groups.

Website: http://www.pacemakerclub.com

Verified: 9/26/2011

Online. Provides support and information on pediatric cardiomyopathy. Offers website discussion forum and biannual newsletter. Working on plans to start community support groups.

Website: http://www.childrenscardiomyopathy.org

Verified: 9/26/2011

Online. Offers support, information and resources to families of children with congenital heart defects, acquired heart disease and adults with congenital heart defects. Also open to interested professionals.

Website: http://www.tchin.org

Verified: 9/26/2011

International network. 50 chapters. Founded 2004. A network of sufferers, medical professionals, various UK based charities and related industriespromoting better understanding, diagnosis, treatment and quality of life for individuals with cardiac arrhythmias.

Write:

Arrhythmia Alliance

P.O. Box 3697, Stratford upon Avon

Warwickshire, UK CV37 8YL

Voice: +44 (0) 17890450787

Website: http://www.heartrhythmcharity.org.uk

E-mail: info@heartrhythmcharity.org.uk

Verified: 8/23/2011

National. Provides support, resources, networking and hope to families affected by congenital heart defects. Provides newsletter, literature, phone support, annual picnic and advocacy.

Write:

Little Hearts, Inc.

P.O. Box 171, 110 Court St. Ste. 3A

Cromwell, CT 06416

Voice: 1-866-435-4673

Fax: 860-635-0006

Website: http://www.littlehearts.org

E-mail: info@littlehearts.org

Verified: 2/1/2012

(BILINGUAL) National. 15 groups. Founded 2005. Mutual support through family matching program (matches families with others that have a similar congenital heart defect diagnosis or by proximity), moderated online message board and listserv. Provides support, education and advocacy for those affected by congenital heart defects by creating alliances with fellow families, hospitals, support groups and the community. Newsletter, online support group and assistance in starting local support groups available.

Write:

It's My Heart

1775 St. James Place, Suite 130

Houston, TX 77056

Voice: 1-888-432-7807; Spanish: 1-877-586-6888

Fax: 1-866-222-0334

Website: http://www.itsmyheart.org

E-mail: info@itsmyheart.org

Verified: 9/21/2011

Online. Support community connecting those who have suffered sudden cardiac arrest, have an implantable defibrillator, are family or caregivers of someone who suffered a cardiac arrest and all who want to interact with others interested in reducing sudden cardiac arrest.

Write:

SCAA

1250 Connecticut Ave., NW, #800

Washington, DC 20036

Website: http://www.suddencardiacarrest.org (click 'Online Community' link on bottom left corner of Home page)

Verified: 10/20/2011

Online. Support for women with heart disease, their family and friends.

Write:

WomenHeart - NCWHD

818 18th St. NW, Ste 1000

Washington, DC 20006

Website: http://www.womenheart.org/supportnetworks

E-mail: mail@womenheart.org

Verified: 4/6/2012

Online. Support for people who are suffering from Long QT (a form of Cardiac Arrhythmia.) Group is open to friends and family.

Website: http://health.groups.yahoo.com/longqt

E-mail: longqt-owner@yahoogroups.com

Verified: 10/24/2011

Online. Offers support for those with hypertropic cardio-mypathy (a condition where the heart muscle become thick).

Write:

Hypertropic CardioMyopathy Assoc.

328 Green Pond Rd., PO Box 306

Hibernia, NJ 07842

Voice: 973-983-7429

Fax: 973-983-7870

Website: http://www4hcm.org or online support forum http://www.4hcm.org/forums/forum.php

Verified: 11/2/2011