Velo-Cardio-Facial Syndrome
Self Help Clearinghouse
Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
National network. Founded 1996. Support and resource network for families coping with velo-cardio-facial syndrome (aka Shprintzen syndrome, 22q11 Deletion syndrome). Provides family programs, parent-to-parent networking, educational materials, newsletter and annual conference.
Write:
Velo-Cardio-Facial Sydrome Educational Foundation
P.O. Box 12591
Dallas, TX 75225
Voice: 855-800-8237
Website: http://www.vcfsef.org
E-mail: info@vcfsef.org
Verified: 8/22/2011