Health Information

 

 

Undiagnosed Illness

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Syndromes Without A Name (SWAN) USA

National. Founded 2004. Mutual support network and information for parents of children with an undiagnosed or unnamed condition. Newsletter and E-list discussion group for parents to share information and provide each other with support.

Write:

Syndromes Without A Name

1745 Lorna Lane

Otsego, MI 49078

Voice: 1-888-880-7926

Website: http://www.undiagnosed-usa.org

E-mail: amyclugston@undiagnosed-usa.org

Verified: 2/7/2013

Hearts and Hands

Model. 1 group in NC. Founded 1993. Emotional, spiritual and educational support for persons with either rare or undiagnosed illnesses and their families. Special interest in loin pain hematuria syndrome.

Write:

Hearts and Hands

c/o Winoka Plummer

1648 Oliver's Crossing Circle

Winston-Salem, NC 27127

Voice: 336-785-7612

Verified: 1/22/2013

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.