Topic Contents
Transverse Myelitis
Self Help Clearinghouse
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Transverse Myelitis Association
International network. 8500 members. Offers support and education to persons with transverse myelitis and other neuroimmunologic diseases of the central nervous system (e.g. acute disseminated encephalomyelitis, optic neuritis and neuromyelitis optica, aka 'Devic's disease') and their families. Networks families together for support. Provides research literature, newsletter and membership directory. Investigates, advocates for and supports research and treatment efforts. Provides a support forum for communication. Bulletin board. Assists in the development of local support groups. Conducts an annual summer camp for children 5-17 years of age with ADEM, NMO, ON and TM and their families. Fund-raises for research and clinical and research fellowships. Conducts symposia and workshops.
Write:
Transverse Myelitis Association
c/o Sandy Siegel
1787 Sutter Parkway
Powell, OH 43065-8806
Voice: 614-766-1806
Website: http://www.myelitis.org
E-mail: ssiegel@myelitis.org
Verified: 9/2/2011
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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