Turner's Syndrome
Self Help Clearinghouse
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Turner Syndrome Support Network
National network. Founded 1989. Network and exchange of information for parents of children with Turner's syndrome. Information and referrals, phone support, pen pals, conferences, literature, annual convention and newsletter. Annual membership $35/yr. (US); $50/yr. (Canada); $60/yr. (overseas).
Write:
Turner Syndrome Support Network
c/o MAGIC Foundation
6645 W. North Ave.
Oak Park, IL 60302
Voice: 1-800-362-4423 or 708-383-0808
Fax: 708-383-0899
Website: http://www.magicfoundation.org
E-mail: mary@magicfoundation.org
Verified: 9/12/2011
Turner Syndrome Society of the U.S.
National. Founded 1987. Support for individuals affected by Turner syndrome. Increases public awareness and promotes research about the disorder.
Write:
Turner Syndrome Society of the US
11250 West Rd. Ste. G
Houston, TX 77065
Voice: 1-800-365-9944 or 832-912-6006
Fax: 832-912-6446
Website: http://www.turnersyndrome.org
E-mail: tssus@turnersyndrome.org
Verified: 8/25/2011
Turner Syndrome Society of Canada
International. 5 chapters. Founded 1981. Provides support and education to Turner syndrome patients and their families. Tapes, publications, referrals to U.S. and Canadian groups. Newsletter, pen pal program, chapter development guidelines and annual conference.
Write:
Turner Syndrome Society of Canada
30 Cleary Avenue, Room 9
Ottawa, ON K2A 4A1, CANADA
Voice: 1-800-465-6744 or 613-321-2267
Fax: 613-321-2268
Website: -X-X-X-X-Error In Website Address!
E-mail: -X-X-X-X-Error In Email Address!
Verified: 8/25/2011
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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