Stickler Syndrome
Self Help Clearinghouse
Stickler Involved People
International network. Founded 1995. Network that offers support and education for persons affected by Stickler syndrome. This genetic disorder affects connective tissues, including the joints, eyes, palate and hearing. Phone support, annual conference, literature, DVD, online listserv, quarterly newsletter, information and referrals.
Write:
Stickler Involved People
15 Angelina
Augusta, KS 67010
Voice: 316-259-5194
Website: http://www.sticklers.org
E-mail: sip@sticklers.org
Verified: 2/1/2012