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Stevens Johnson Syndrome

Self Help Clearinghouse

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Stevens-Johnson Syndrome Foundation

International network. Founded 1995. Provides to the public and medical communities information on adverse allergic drug reactions. Aim is to quicken diagnoses to avoid permanent damage. Literature, phone support, chatroom, online group, moderated discussion group, information and referrals.

Write:

Stevens-Johnson Syndrome Foundation

P.O. Box 350333

Westminster, CO 80035

Voice: 303-635-1241

Fax: 303-648-6686

Website: http://www.sjsupport.org and http://www.sjskidssupport.org

E-mail: sjsupport@aol.com

Verified: 4/1/2011

Aniridia Foundation International

International. Founded 2002. Offers support, data studies, research and education to the public, medical community and members with aniridia (absence of iris). Provides information, referrals, literature, newsletter, phone support, pen pals and conferences. Online e-mail support and chatrooms. Also supports those with low vision or blindness who experience the same associated conditions such as glaucoma, corneal disease and cataracts. OPTIC program helps those with Stevens-Johnson syndrome, chemical and thermal burns to the eyes and other corneal dystrophy patients.

Write:

Aniridia Foundation International

c/o Univ. of VA School of Med.

P.O. Box 800715

Charlottesville, VA 22908-0715

Voice: 901-409-1600

Website: http://www.aniridia.net

E-mail: info@aniridia.net

Verified: 1/14/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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