Spinal Muscular Atrophy
Self Help Clearinghouse
Families of SMA
(MULTILINGUAL) International. 31 chapters. Founded 1984. Support and networking for families affected by spinal muscular atrophy types I, II, III, adult onset and Kennedy's. Educational resources, group development guidelines, quarterly newsletter, phone support and videotapes. Online message boards and kids corner support. Funds research.
Write:
Families of SMA
925 Busse Rd.
Elk Grove Village, IL 60007
Voice: 1-800-886-1762
Fax: 847-367-7623
Website: http://www.fsma.org or http://www.curesma.com
E-mail: info@fsma.org
Verified: 2/1/2012