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Scleroderma

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Scleroderma Foundation

National. 23 chapters, 170 affiliated groups. Founded 1998. Dedicated to providing emotional support to people with scleroderma, their families and caregivers. Sponsors scleroderma education and public awareness events and funds research. Referrals to local support groups and physicians. Advocacy program and annual conference. Online message board. Dues $25/yr.

Write:

Scleroderma Foundation

300 Rosewood Dr., Suite 105

Danvers, MA 01923

Voice: 1-800-722-4673 or 978-463-5843 (Mon.-Fri., 8:30am-5pm EST)

Fax: 978-463-5809

Website: http://www.scleroderma.org

E-mail: sfinfo@scleroderma.org

Verified: 9/21/2011

Scleroderma Research Foundation

National. Founded 1987. Mission is to find a cure for scleroderma by funding and facilitating the most promising research. Provides scleroderma information online and via 'Insights' scleroderma newsletter.

Write:

Scleroderma Research Foundation

220 Montgomery St., Suite 1411

San Francisco, CA 94104

Voice: 1-800-441-2873

Fax: 415-834-9177

Website: http://www.sclerodermaresearch.org

E-mail: info@sclerodermaresearch.org

Verified: 4/1/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.

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