Topic Contents

Robinow Syndrome Foundation

Robinow Syndrome

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Robinow Syndrome Foundation

National network. Founded 1994. Aim is to locate, educate and support persons affected by Robinow syndrome (also known as fetal face syndrome) a very rare, genetic dwarfing syndrome. Online support, bi-annual conventions and family networking.

Write:

Robinow Syndrome Foundation

c/o Karla Kruger

P.O. Box 1072

Anoka, MN 55303

Voice: 763-291-7190

Website: http://www.robinow.org

E-mail: kmkruger@comcast.net

Verified: 8/25/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.

Top of Page

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.