Health Information



Rett Syndrome

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

International Rett Syndrome Foundation

International. 17 affiliated groups. Founded 1985. For parents, interested professionals and others concerned with Rett syndrome. Provides information and referral, peer support among parents and funds research. Quarterly newsletter. Dues free/corresponding partner; $40/yr. (active partner); $50/yr. (international); $175/yr. (organization).


International Rett Syndrome Foundation

4600 Devitt Dr.

Cincinnati, OH 05246

Voice: 1-800-818-7388 or 513-874-3020

Fax: 513-874-2520



Verified: 1/9/2013

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.