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Pseudoxanthoma Elasticum

Self Help Clearinghouse

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PXE International, Inc.

International. 41 affiliated groups. Founded 1995. Supports patients and educates clinicians. Offers support groups, listservs, literature, semi-annual newsletter, phone and mail contacts. Offers assistance in starting similar groups. Initiates, funds and manages research.

Write:

PXE International, Inc.

4301 Connecticut Ave., NW

Suite 404

Washington, DC 20008-2369

Voice: 202-362-9599

Fax: 202-966-8553

Website: http://www.pxe.org

E-mail: info@pxe.org

Verified: 9/21/2011

National Association for Pseudoxanthoma Elasticum

National network. Founded 1988. Support, education, research and advocacy for persons with Pseudoxanthoma Elasticum, their families, interested others and professionals. Phone support, newsletter, information and referrals. Donations appreciated and tax-deductible.

Write:

National Association for Pseudoxanthoma Elasticum

8764 Manchester Rd., Suite 200

Saint Louis, MO 63144-2724

Voice: 314-962-0100 (voice/fax)

Fax: 314-962-0100 (voice/fax)

Website: http://www.pxenape.org

E-mail: napestlouis@sbcglobal.net

Verified: 8/22/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.

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