Pierre Robin
Self Help Clearinghouse
Pierre Robin Network
National network. Founded 1999. Support and education for individuals, parents, caregivers and professionals dealing with Pierre Robin syndrome or sequence. Literature, newsletter, information, advocacy, online e-mail group and bulletin board. Outreach committee comprised of families worldwide available to correspond via mail, phone, in person or e-mail.
Write:
Pierre Robin Network
3604 Biscayne
Quincy, IL 62305
Fax: 217-224-6659
Website: http://www.pierrerobin.org
E-mail: info@pierrerobin.org
Verified: 8/30/2011