Parry-Romberg Syndrome
Self Help Clearinghouse
The Romberg's Connection
Online. Founded 1997. Offers mutual support for persons affected by Parry Romberg's syndrome (aka progressive facial hemiatrophy) and their families. Parry-Romberg syndrome is a rare disorder causing atrophy to usually one half of the face.
Website: http://www.therombergsconnection.com
Verified: 9/21/2011