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NBIA Disorders Association

Neurodegeneration w/ Brain Iron Accumulation

Self Help Clearinghouse

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NBIA Disorders Association

International network. Founded 1996. Provides emotional support to families affected by neurodegeneration with brain iron accumulation, a grouo of rare progressive neurological disorders with high brain iron and a movement disorder, along with various other symptoms. Educates public on NBIA, supports and monitors research and awards research grants. Newsletter, literature, bi-annual conferences, online listserv, family networking program and advocacy efforts.

Write:

NBIA Disorders Association

2082 Monaco Ct.

El Cajon, CA 92109-4235

Voice: 619-588-2315

Fax: 619-588-4093

Website: http://www.nbiadisorders.org

E-mail: info@nbiadisorders.org

Verified: 8/24/2011

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