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Marinesco-Sjogren Syndrome

Self Help Clearinghouse

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Marinesco-Sjogren Syndrome Support Group

National network. Founded 2000. Support for families affected by Marinesco-Sjogren syndrome (MSS) a rare, genetic disorder characterized by ataxia, cataracts, small stature and retardation. Encourages research into the cause and cure. Information and referrals.


MSS Support Group

1640 Crystal View Circle

Newbury Park, CA 91320

Voice: 805-499-7410



Verified: 2/1/2012

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