Mucopolysaccharidoses / Morquio's Syndrome
Self Help Clearinghouse
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National MPS Society
National. Founded 1974. Provides support and hope for individuals with mucopolysaccharidoses or mucolipidoses and their families through research, advocacy, public education and parent referral service for support networking.
National MPS Society
P.O. Box 14686
Durham, NC 27709
Voice: 919-806-0101 or 1-877-677-1001
The International Morquio Support Group
International network. Founded 1999. Provides support and education for families of children with Morquio Type A. Helps educate health care professionals about this lysosomal storage disease. Funds research. Maintains database of families. Referrals to physicians and medical information, pen pals, phone support, conferences and newsletter, online guestbook and helpful links.
Morquio Support Group
8164 W. Circulo DeLos Morteros
Tucson, AZ 85743
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