Self Help Clearinghouse
This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.
Amyloidosis Support Groups, Inc.
National. 21 regional groups. Founded 2005. Support for patients, caregivers, families, those who lost loved ones to amyloidosis and friends of amyloidosis patients. Also deals with multiple myeloma, peripheral neuropathy, familial amyloidosis and protein misfolding. Telephone support network, pen pal program, educational materials, national conference, advocacy, information and referrals. Online mutual aid activities include message board and mailing list. Assistance in starting and maintaining groups.
Amyloidosis Support Groups
232 Orchard Drive
Wood Dale, IL 60191
International Myeloma Foundation (IMF)
International network. 100+ groups. Founded 1990. Goal is to improve the quality of life of myeloma patients while working toward prevention and a cure. The IMF operates a Myeloma Hotline, disseminates comprehensive printed and online information about myeloma, treatment options and disease management. Seminars and workshops for the patient community and medical professionals.
International Myeloma Foundation
12650 Riverside Dr., Ste. 206
North Hollywood, CA 91607
Voice: 818-487-7455 or 1-800-452-2873 (Mon.-Fri., 9am-4pm PST)
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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