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Leukodystrophy

Self Help Clearinghouse

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MLD Foundation

Online. Support for parents and caregivers of children with metachromatic leukodystrophy.

Write:

MLD Foundation

21345 Miles Drive

West Linn, OR 97068-2878

Voice: 503-656-4808

Website: http://mldfoundation.org

E-mail: info@mldfoundation.org

Verified: 9/20/2011

United Leukodystrophy Foundation, Inc.

National network. Founded 1982. Provides information and resources for leukodystrophy patients and their families. Communication network among families. Promotes research, public and professional awareness. National conference and quarterly newsletter. Dues $25/family; $50/professional.

Write:

United Leukodystrophy Foundation, Inc.

2304 Highland Dr.

Sycamore, IL 60178

Voice: 1-800-728-5483

Fax: 815-895-2432

Website: http://www.ulf.org

E-mail: office@ulf.org

Verified: 9/12/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.

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