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Kabuki Syndrome Network

Kabuki Syndrome

Self Help Clearinghouse

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Kabuki Syndrome Network

(BILINGUAL)_International network. Founded 1997. Provides mutual support and information for families affected by Kabuki syndrome (aka Niikawakuroki syndrome). Coordinates family directory. Literature, phone support, pen pals, moderated listserv and newsletter. Brochure in English and Spanish available.

Write:

Kabuki Syndrome Network

c/o Dean and Margot Schmiedge

8060 Struthers Cr.

Regina, Saskatchewan S4Y 1J3, CANADA

Voice: Margot and Dean Schmiedge 306-543-8715

Website: http://www.kabukisyndrome.com

E-mail: margot@kabukisyndrome.com

Verified: 8/22/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.

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