Topic Contents

Incontinence

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Simon Foundation for Continence

National. Founded 1983. Support and advocacy for people suffering from incontinence. Newsletter, books, video, fact sheets, educational program called, 'I Will Manage'. and international conference series entitled Innovating for Continence.

Write:

Simon Foundation for Continence

P.O. Box 835

Wilmette, IL 60091

Voice: 1-800-237-4666

Fax: 847-864-9758

Website: http://www.simonfoundation.org

E-mail: cbgartley@simonfoundation.org or info@simonfoundation.org

Verified: 8/24/2011

National Association For Continence (NAFC)

(BILINGUAL) National. Dedicated to improving the quality of life of people with incontinence by providing support and information about the causes, prevention, diagnosis, treatments and management alternatives for incontinence. Offers telephone support network, moderated message board and listserv. Newsletter, literature (some available in Spanish), regional conferences, information and referrals.

Write:

NAFC

P.O. Box 1019

Charleston, SC 29402

Voice: 1-800-252-3337

Fax: 843-377-0905

Website: http://www.nafc.org

E-mail: memberservices@nafc.org

Verified: 9/21/2011

The Pull-thru Network

International network. Founded 1988. Support and information for the families with children born with anorectal, colorectal or urogenital disorder and any of the associated diseases. Disorders include bladder exstrophy, imperforate anus, VATER/VACTERL association, anal stenosis, cloacal exstrophy and Hirschsprung's disease. Maintains a database for personal networking. Quarterly magazine, online discussion group, weekly chat for members, phone support and literature. Dues $30/year - can be waived upon request.

Write:

Pull-thru Network

2312 Savoy St.

Hoover, AL 35226

Voice: 205-978-2930

Website: http://www.pullthrunetwork.org

E-mail: ptnmail@charter.net

Verified: 3/29/2012

Continence Restored, Inc.

International. 8 affiliated groups. Founded 1984. Forum where persons with incontinence, their families and friends can express concerns and receive assistance. Disseminates information on bladder control. Phone support. Assistance in starting groups.

Write:

Continence Restored, Inc.

407 Strawberry Hill Ave.

Stamford, CT 06902

Voice: 203-348-0601

E-mail: as4young@optonline.net

Verified: 10/17/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2012 American Self-Help Group Clearinghouse. All rights reserved.

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