Gorlin Syndrome / Basal Cell Carcinoma Nevus Synd
Self Help Clearinghouse
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Basal Cell Carcinoma Nevus Syndrome Life Support Network * National network. Provides support services to patients, families and medical professionals dealing with the many manifestations of basal cell carcinoma nevus syndrome (aka Gorlin syndrome or nevoid basal cell syndrome). Offers online forum, quarterly newsletter, annual retreats and conferences for families. Periodiceducational regional meetings for understanding treatment options, self-esteem building, clinical trial opportunities and raising family awareness.
PO Box 321
Burton, OH 44021
Voice: 1-866-834-1895 or 440-834-0011
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