Topic Contents

Association For Glycogen Storage Disease

Glycogen Storage Disease

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Association For Glycogen Storage Disease

U.S. and Canadian network. 13 affiliated groups. Founded 1979. Mutual support and information sharing among parents of children and patients with glycogen storage disease. Fosters communication between parents, patients and professionals, creates public awareness and encourages research. Offers GSDnet support group via e-mail. Newsletter, phone support and annual family/professional conference.

Write:

Assn. for Glycogen Storage Disease

P.O. Box 896

Durant, IA 52747

Voice: 563-514-4022

Website: http://www.agsdus.org

E-mail: maryc@agsdus.org

Verified: 9/2/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.

Top of Page

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.