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Fragile X Syndrome

Self Help Clearinghouse

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FRAXA Research Foundation

International. 30 affiliated groups. Founded 1994. Support and information on Fragile X syndrome. Funds medical research, investigator-initiated grants and postdoctoral fellowships. Newsletter and literature. Some chapters have support group meetings. Guidelines available on starting a similar group.

Write:

FRAXA Research Foundation

45 Pleasant St.

Newburyport, MA 01950

Voice: 978-462-1866

Fax: 978-463-9985

Website: http://www.fraxa.org

E-mail: info@fraxa.org

Verified: 8/30/2011

The National Fragile X Foundation

International. Founded 1984. Mission includes phone and e-mail support, promoting awareness, education, research and legislative advocacy regarding Fragile X associated disorders (fragile x sundrome, fragile X-associated tremor/ataxia syndrome and fragile X-associated primary ovarian insufficiency). Services include a quarterly journal, regional and international conferences and educational materials (free and fee-based).

Write:

National Fragile X Foundation

P.O. Box 37

Walnut Creek, CA 94597

Voice: 1-800-688-8765 (Mon.-Fri., 8:30am-5pm PST)

Fax: 925-938-9315

Website: http://www.fragilex.org

E-mail: natlfx@fragilex.org

Verified: 9/21/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

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