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Ehlers Danlos Syndrome

Self Help Clearinghouse

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Ehlers-Danlos National Foundation

National. 35 local groups. Founded 1985. Provides resources for Ehlers-Danlos syndrome patients, families and health care professionals. Mission is to disseminate accurate information, provide a network of support and communication and to foster research. Online message boards for EDNF members.



1760 Old Meadow Rd., Ste 500

McLean, VA 22102

Voice: 703-506-2892

Fax: 703-506-3266



Verified: 2/12/2013

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