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Ehlers-Danlos National Foundation

Ehlers Danlos Syndrome

Self Help Clearinghouse

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Ehlers-Danlos National Foundation

National. 35 local groups. Founded 1985. Provides resources for Ehlers-Danlos syndrome patients, families and health care professionals. Mission is to disseminate accurate information, provide a network of support and communication and to foster research. Online message boards for EDNF members.

Write:

EDNF

1760 Old Meadow Rd., Ste 500

McLean, VA 22102

Voice: 703-506-2892

Website: http://www.ednf.org

E-mail: endstaff@ednf.org

Verified: 9/2/2011

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For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

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