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Dystrophic Epidermolysis Bullosa

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DebRA of America

(Dystrophic Epidermolysis Bullosa Research Association) National network. Founded 1980. Support and information for families affected by Epidermolysis Bullosa. Provides education for patients, families and professionals; emergency financial support, emergency wound care supplies; New Family Advocate program; newsletter, biennial national conference, information and referrals. Promotes research for a cure.

Write:

DEBRA of America

16 E. 41st., 3rd Floor

New York, NY 10017

Voice: 212-868-1573 or 1-866-332-7276

Fax: 212-868-9296

Website: http://www.debra.org

E-mail: staff@debra.org or nurse@debra.org

Verified: 1/24/2013

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