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The Coffin-Lowry Syndrome Foundation

Coffin-Lowry Syndrome

Self Help Clearinghouse

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The Coffin-Lowry Syndrome Foundation

International network. Founded 1991. Serves as a clearinghouse for information on Coffin-Lowry syndrome. Forum for exchanging experiences, advice and information with other CLS families. Seeks to become a visible group in the medical, scientific, educational and professional communities in order to facilitate referrals of newly diagnosed individuals and to encourage medical and behavioral research. Maintains mailing list of families and professionals. Provides newsletter, family support and informational packet.

Write:

The Coffin-Lowry Syndrome Foundation

c/o Mary Hoffman

675 Kalmia PIace NW

Issaquah, WA 98027

Voice: 425-427-0939 (after 5:30pm PST)

Website: http://clsf.info

E-mail: coffinlowry@gmail.com

Verified: 8/22/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.

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