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Cockayne Syndrome

Self Help Clearinghouse

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Share and Care Cockayne Syndrome Network

(MULTILINGUAL) International network. Founded 1981. Mutual support and networking for families affected by Cockayne syndrome. Sharing of information between families and professionals. Maintains registry of families. Information, referrals, newsletter and phone support. Website and pamphlet available in Spanish, Japanese, German and Portuguese.


Share and Care Cockayne Syndrome

P.O. Box 282

Waterford, VA 20197

Voice: 703-727-0404



Verified: 1/17/2013

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