Self Help Clearinghouse
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American Celiac Society/Dietary Support Coalition
National. 78 affiliated chapters. Founded 1976. Mutual support and information for celiac-sprue patients, families and health care professionals. Buddy system, visitation, phone help system, newsletter and participation in educational efforts. Also supports dermatitis herpetiformis, Crohn's disease, lactose intolerance and other food allergies.
American Celiac Society
c/o Mrs. Annette Bentley
P.O. Box 23455
New Orleans, LA 70183
Celiac Sprue Association/United States of America, Inc.
National. 150+ local CSA chapters and Resource Units. Founded 1969. Provides educational materials on celiac sprue, dermatitis herpetiformis and basics for the gluten free diet for patients, parents of children with celiac sprue and professionals. Children's camp during August in Rhode Island. CelKids network. Provides opportunities for support groups and networking with patients and professionals. Newsletter and annual conference. Group development guidelines.
Celiac Sprue Association / USA
P.O. Box 31700
Omaha, NE 68131-0700
Celiac Disease Foundation
National. Founded 1990. Creates awareness and provides services and support for patients, their families, medical and healthcare professionals seeking information about celiac disease/dermatitis herpetiformis. Free information packets. Annual membership $40. Handbook 'Guidelines For a Gluten-Free Lifestyle' is included with annual membership or sold separately for $10. Members receive a quarterly newsletter and update notices of upcoming events. Brochure and quick start diet guide available.
Celiac Disease Foundation
13251 Ventura Blvd., Suite 1
Studio City, CA 91604
Voice: 818-990-2354 (day)
Gluten Intolerance Group of North America
National network. 60+ affiliated groups. Founded 1974. Mission is to increase awareness by providing accurate and up-to-date information, education and support to persons with gluten intolerance, celiac disease/dermatitis herpetiformis, their families, health care professionals and the public. Offers news magazine ($35/yr.), information and referrals, conferences, e-mail support, guidance to those starting groups, group development guidelines and cookbooks.
Gluten Intolerance Group
31214 124th Ave SE
Auburn, WA 98092
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
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