Batten Disease
Self Help Clearinghouse
Batten Disease Support and Research Association
International. 20 affiliated groups. Founded 1987. Emotional support for persons with Batten disease. Information and referrals, family support, annual conferences and newsletter. Assistance provided for starting new groups.
Write:
Batten Disease Support and Research Association
166 Humprhies Dr.
Reynoldsburg, OH 43068
Voice: 1-800-448-4570
Website: http://www.bdsra.org
E-mail: bdsra1@bdsra.org
Verified: 8/25/2011