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Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Myelodysplastic Syndromes Foundation

Online. Unmoderated forums for patients and professionals dealing with myelodysplastic syndromes, a group of bone marrow diseases. Also has referrals to treatment centers.


Myelodysplastic Syndromes Foundati

4573 S. Broad Street, Ste 150

Yardville, NJ 08620


Verified: 2/14/2013

Cooley's Anemia Foundation

National. 10 chapters. Founded 1954. Offers education and networking for families affected by Cooley's anemia (thalassemia). Fund-raising for research. Newsletter, annual seminars, research grants, patient support group, patient services and chapter development guidelines.


Cooley's Anemia Foundation

330 Seventh Ave., Suite 200

New York, NY 10001

Voice: 1-800-522-7222 or 212-279-8090

Fax: 212-279-5999



Verified: 1/9/2013

Aplastic Anemia and MDS International Foundation, Inc.

International. Founded 1983. Offers a support network where patients and families can connect with others. Provides free educational materials for those affected by aplastic anemia, MDS and PNH, advocacy, newsletters, webinars, interactive online learning center, and funds research.


Aplastic Anemia and MDS Int'l Fdn.

100 Park Ave., Suite 108

Rockville, MD 20850

Voice: 1-800-747-2820 or 301-279-7202

Fax: 301-279-7205



Verified: 2/12/2013

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