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Alagille Syndrome Alliance

Alagille Syndrome

Self Help Clearinghouse

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Alagille Syndrome Alliance

National network. Founded 1993. Support network for anyone who cares about people with Alagille syndrome, a rare, multi-symptom genetic disorder. Disseminates information. Aims to increase awareness in the general public as well as health professionals. Newsletter, phone support, medical advisory board, information and referrals. Online chatroom and bulletin board.

Write:

Alagille Syndrome Alliance

c/o Cindy L. Hahn

10500 SW Starr Dr.

Tualatin, OR 97223

Voice: 503-885-0455

Website: http://www.alagille.org

E-mail: alagille@alagille.org

Verified: 10/20/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

Copyright © 2011 American Self-Help Group Clearinghouse. All rights reserved.

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