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Blind / Visually Impaired

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

American Council of the Blind

National. 72 affiliates. Founded 1961. Aims to improve the well-being of all blind or visually impaired people and their families through education, support and advocacy. National conference, information and referrals, phone support, state and special interest affiliates e.g. guide dog users, blind lawyers, teachers and students. Monthly magazine (available in Braille, half speed cassette, large print, data CD, online or via e-mail; free to members, all others pay $25 per format per year). College scholarships. Online job bank. Chapter development guidelines.

Write:

American Council of the Blind

1155 15th Street NW, Suite 1004

Washington, DC 20005

Voice: 1-800-424-8666 or 202-467-5081

Fax: 703-465-5085

Website: http://www.acb.org

E-mail: info@acb.org

Verified: 1/10/2013

Massachusetts Assoc. for the Blind and Visually Impaired

National. 34 groups. Founded 1903. Support network for persons coping with sight loss. Sponsors support groups for elders and mixed ages. Outreach services and community volunteers.

Write:

MAB Community Services

200 Ivy St.

Brookline, MA 02446

Voice: 617-926-42321 or 1-800-852-3029 (MA only) (Mon.-Fri., 9am-5pm EST)

Fax: 617-738-1247

Website: http://www.mabcommunity.org

E-mail: jbreda@mabcommunity.org

Verified: 2/7/2013

Blinded Veterans Association

National. 54 regional groups. Founded 1945. Support, information and outreach to blinded veterans including those who were blinded in combat and those suffering from age-related macular degeneration and other eye diseases. Help in obtaining prosthetic devices and accessing the latest technological advances to assist the blind. Information on benefits and rehabilitation programs. Quarterly newsletter. Regional meetings.

Write:

Blinded Veterans Association

477 H Street, NW

Washington, DC 20001

Voice: 1-800-669-7079 or 202-371-8880

Fax: 202-371-8258

Website: http://www.bva.org

E-mail: bva@bva.org

Verified: 1/15/2013

National Federation of the Blind

National. 52 affiliates. Founded 1940. Serves as both an advocacy and a public information vehicle. Provides support and information on services and applicable laws. Student scholarships. Assists blind persons who are victims of discrimination. Literature, monthly meetings and magazine. Assistance in starting new groups.

Write:

National Federation of Blind

200 E. Wells St.

Baltimore, MD 21230-4998

Voice: 410-659-9314

Fax: 410-685-5653

Website: http://www.nfb.org

E-mail: nfb@nfb.org

Verified: 1/23/2013

Council of Citizens with Low Vision International

International. Founded 1979. Encourages low vision people to make full use of vision through use of equipment, technology and services. Education, advocacy, quarterly magazine, group development guidelines, scholarships, conferences, information and referrals.

Write:

CCLVI

2200 Wilson Blvd.

Arlington, VA 22201

Voice: 1-800-733-2258 (Mon.-Fri, 9am-4pm EST)

Website: http://www.cclvi.org

E-mail: webmaster@cclvi.org

Verified: 1/9/2013

National Organization of Parents of Blind Children

National. 25 chapters. Founded 1983. Serves as both an advocacy and public information vehicle. Provides information on services available. Offers positive philosophy and insights into blindness and practical guidance in raising a blind child. 'Future Reflections' magazine, parent seminars, free parents' information packet, meetings and conventions. Dues $8.

Write:

Natl Org Parents of Blind Child

200 East Well St.

Baltimore, MD 21230

Voice: 410-659-9314

Fax: 410-685-5653

Website: http://www.nopbc.org

E-mail: nfb@nfb.org

Verified: 1/9/2013

Leber's Congenital Amaurosis eGroup

Online. 750 members. Founded 1999. Provides a listserv for everyone interested in sharing and sourcing information relating to this genetic disorder.

Website: http://groups.yahoo.com/group/lca

E-mail: lca-owner@yahoogroups.com

Verified: 1/9/2013

National Keratoconus Foundation

National network. Founded 1986. Provides information and support to persons with keratoconus, an eye condition where the cornea progressively thins causing a cone-like bulge. Newsletter, phone support, information and referrals. Online support group. Encourages research into cause and treatment.

Write:

National Keratoconus Foundation

6222 Wilshire Blvd. Ste. 260

Los Angeles, CA 90048

Voice: 1-800-521-2524

Fax: 310-623-1837

Website: http://www.nkcf.org

E-mail: info@nkcf.org

Verified: 1/9/2013

Aniridia Foundation International

International. Founded 2002. Offers support, data studies, research, and education to the public, medical community and families with aniridia syndrome. (Children born with multiple blinding eye and medical conditions). Provides medical and social conferences, newsletters, medical research for conditions which make up the condition.

Write:

Aniridia Foundation International

c/o Univ. of Va, School of Med.

P.O. Box 800717

Charlottesville, VA 22908-0715

Voice: 434-243-3357

Website: http://www.research4vision.org

E-mail: info@aniridia.net

Verified: 1/22/2013

Jewish Guild Healthcare

National. Founded 1914. Support for persons of all ages who are visually impaired, blind and those with additional disabilities. Telephone support network brings together parents from around the country whose children have the same condition (Retinopathy of Prematurity, Retinitis Pigmentosa, Cortical Visual Impairment, Leber Congenital Amaurosis CHARGE Syndrome a group for siblings, and a group for blind teenagers planning to attend college) to speak with parents in the same situation. Newsletter and literature available on the website or in hard copy.

Write:

The Jewish Guild Healthcare

15 West 65th Street

New York, NY 10023

Voice: 1-800-284-4422 or 212-769-7800 For direct information on the tele-support network call Dan Callahan 212-769-7815.

Website: http://www.jgb.org

E-mail: info@jgb.org

Verified: 1/24/2013

MD Support: The Eyes of the Macular Degeneration Community

International. 134 chapters/affiliated groups. Founded 1995. Provides information and support for people who are affected by macular degeneration and similar retinal diseases. Large informational website, monthly webcasts, email discussion group, message board, telephone and live support groups, telephone help line.

Write:

MD Support

3600 Blue Ridge Blvd.

Grandview, MO 64030

Voice: 888-861-6148 or 816-761-7080

Website: http://www.mdsupport.org

E-mail: irector@mdsupport.org

Verified: 1/10/2013

Congenital Glaucoma Network, The

Online. Founded 2011. Provides support, facilitates discussion and promotes awareness of congenital and childhood glaucoma internationally.

Write:

Contact via website's contact page

Website: http://congenitalglaucomanetwork.com

Verified: 1/16/2013

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