Progressive Supranuclear Palsy
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Progressive Supranuclear Palsy is not the name you expected.
Progressive supranuclear palsy (PSP) is an uncommon degenerative neurological disorder that causes progressive impairment of balance and walking; impaired eye movement, especially in the downward direction; abnormal muscle tone (rigidity); speech difficulties (dysarthria); and problems related to swallowing and eating (dysphagia). Affected individuals frequently experience personality changes and cognitive impairment. Symptoms typically begin after age 60 but can begin earlier. The exact cause of PSP is unknown. PSP is often misdiagnosed as Parkinson disease, Alzheimer disease, corticobasal degeneration and other neurodegenerative disorders.
Drs. John C. Steele, J.C. Richardson and J. Olszewski identified progressive supranuclear palsy as a distinct neurological disorder in 1963.
Association for Frontotemporal Degeneration (AFTD)
- Radnor Station Building #2, Suite 320
- 290 King of Prussia Road
- Radnor, PA 19087
- Tel: (267)514-7221
- Tel: (866)507-7222
- Email: firstname.lastname@example.org
- Website: http://www.theaftd.org
CurePSP: Foundation for PSP l CBD & Related Brain Diseases
- 30 E. Padonia Road, Suite 201
- Timonium, MD 21093
- Tel: (410)785-7004
- Fax: (410)785-7009
- Tel: (800)457-4777
- Email: email@example.com
- Website: http://www.curepsp.org
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
NIH/National Institute of Neurological Disorders and Stroke
- P.O. Box 5801
- Bethesda, MD 20824
- Tel: (301)496-5751
- Fax: (301)402-2186
- Tel: (800)352-9424
- Website: http://www.ninds.nih.gov/
National Parkinson Foundation, Inc.
- 1501 NW 9th Ave/Bob Hope Road
- Miami, FL 33136-1494
- Tel: (305)243-6666
- Fax: (305)243-6073
- Tel: (800)327-4545
- Email: firstname.lastname@example.org
- Website: http://www.parkinson.org
Progressive Supranuclear Palsy Association UK
- PSP House
- 167 Watling Street West
- Northamptonshire, NN12 6BX
- United Kingdom
- Tel: 1327322410
- Fax: 1327322412
- Email: email@example.com
- Website: http://www.pspeur.org/
UCSF Memory and Aging Center
- 350 Parnassus Avenue
- Suite 905
- San Francisco, CA 94117
- Tel: (415)476-6880
- Fax: (415)476-4800
- Email: firstname.lastname@example.org
- Website: http://www.memory.ucsf.edu
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
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This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 1/27/2014
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