Post Polio Syndrome
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Post Polio Syndrome is not the name you expected.
Post-polio syndrome (PPS) is a syndrome that affects some people who have had polio (poliomyelitis) and occurs many years (typically from 10 to 40 years) after recovery from the initial infection. It is characterized by the development of progressive weakness in muscles that were affected by the original polio infection. In addition, those affected may experience extreme fatigue and joint pain. Skeletal deformities, such as scoliosis, may occur as a result of this syndrome. There is variation in the severity of symptoms. In severe cases, symptoms may mimic those of the rare disorder known as Lou Gehrig's disease (amyotrophic lateral sclerosis). The degree of muscle atrophy during the post-polio period appears to reflect the severity of the impact of the initial polio infection. People who were significantly affected by polio are more likely to experience severe symptoms from post-polio syndrome. The cause of this syndrome is not known. Although exact numbers are not available, it has been estimated that there are 300,000 polio survivors in the United States and that from one-fourth to one-half of them may ultimately develop some degree of post-polio syndrome.
British Polio Fellowship
- 44 Clarendon Road
- Watford, Hertfordshire WD17 1JJ
- United Kingdom
- Fax: 2088420555
- Tel: 0800 043 1935
- Email: email@example.com
- Website: http://www.britishpolio.org.uk
Centers for Disease Control and Prevention
- 1600 Clifton Road NE
- Atlanta, GA 30333
- Tel: (404)639-3534
- Tel: (800)232-4636
- Email: firstname.lastname@example.org
- Website: http://www.cdc.gov/
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
New Horizons Un-Limited, Inc.
- 811 East Wisconsin Ave
- P.O. Box 510034
- Milwaukee, WI 53203
- Tel: (414)299-0124
- Fax: (414)347-1977
- Email: email@example.com
- Website: http://www.new-horizons.org
- 4200 Wisconsin Avenue
- Suite 106273
- Washington, DC 20016
- Tel: (301)897-8180
- Fax: (202)466-1911
- Email: firstname.lastname@example.org
- Website: http://www.poliosociety.org/
Post-Polio Health International
- 4207 Lindell Boulevard
- St. Louis, MO 63108-2915
- Tel: (314)534-0475
- Fax: (314)534-5070
- Email: email@example.com
- Website: http://www.post-polio.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
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This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 4/8/2009
Copyright 2009 National Organization for Rare Disorders, Inc.
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