Mycosis Fungoides

National Organization for Rare Disorders, Inc.

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It is possible that the main title of the report Mycosis Fungoides is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Mycosis fungoides is a rare form of T-cell lymphoma of the skin (cutaneous); the disease is typically slowly progressive and chronic. In individuals with mycosis fungoides, the skin becomes infiltrated with plaques and nodules that are composed of lymphocytes. In advanced cases, ulcerated tumors and infiltration of lymph nodes by diseased cells may occur. The disorder may spread to other parts of the body including the gastrointestinal system, liver, spleen, or brain.

Supporting Organizations

American Cancer Society, Inc.

250 Williams NW St
Ste 6000
Atlanta, GA 30303
Tel: (404)320-3333
Tel: (800)227-2345

Cancer Support Community

1050 17th St NW Suite 500
Washington, DC 20036
Tel: (202)659-9709
Fax: (202)974-7999
Tel: (888)793-9355

Cutaneous Lymphoma Foundation

PO Box 374
Birmingham, MI 48012-0374
Tel: (248)644-9014
Fax: (248)233-3769

Friends of Cancer Research

1800 M Street NW
Suite 1050 South
Washington, DC 22202
Tel: (202)944-6700

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311

International Society for Cutaneous Lymphomas

303 W. State Street
Geneva, IL 60134
Tel: 1-630-578-3991
Fax: 1-630-262-1520

Livestrong Foundation

2201 E. Sixth Street
Austin, TX 78702
Tel: (512)236-8820
Fax: (512)236-8482
Tel: (877)236-8820

Rare Cancer Alliance

1649 North Pacana Way
Green Valley, AZ 85614

Skin Cancer Foundation

149 Madison Avenue
Suite 901
New York, NY 10016
Tel: (212)725-5176
Fax: (212)725-5751
Tel: (800)754-6490

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

Last Updated:  10/25/2013
Copyright  2013 National Organization for Rare Disorders, Inc.