Locked In Syndrome
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Locked In Syndrome is not the name you expected.
Locked-in syndrome is a rare neurological disorder in which there is complete paralysis of all voluntary muscles except for the ones that control the movements of the eyes. Individuals with locked-in syndrome are conscious and awake, but have no ability to produce movements (outside of eye movement) or to speak (aphonia). Cognitive function is usually unaffected. Communication is possible through eye movements or blinking. Locked-in syndrome is caused by damaged to the pons, a part of the brainstem that contains nerve fibers that relay information to other areas of the brain.
NIH/National Institute of Neurological Disorders and Stroke
- P.O. Box 5801
- Bethesda, MD 20824
- Tel: (301)496-5751
- Fax: (301)402-2186
- Tel: (800)352-9424
- Website: http://www.ninds.nih.gov/
National Rehabilitation Information Center
- 8400 Corporate Drive
- Suite 500
- Landover, MD 20785
- United States
- Tel: (301)459-5900
- Fax: (301)459-4263
- Tel: (800)346-2742
- Email: email@example.com
- Website: http://www.naric.com
National Stroke Association
- 9707 E. Easter Lane
- Suite B
- Centennial, CO 80112
- Tel: (303)649-9299
- Fax: (303)649-1328
- Tel: (800)787-6537
- Email: firstname.lastname@example.org
- Website: http://www.stroke.org
United States Society for Augmentative and Alternative Communication
- 100 E. Pennsylvania Avenue, Courtyard
- Towson, MD 21286
- Tel: (877)887-7222
- Email: email@example.com
- Website: http://www.ussaac.org/
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 8/12/2010
Copyright 2010 National Organization for Rare Disorders, Inc.
Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.