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Acoustic Neuroma

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Acoustic Neuroma is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • acoustic neurilemoma
  • acoustic neurinoma
  • fibroblastoma, perineural
  • neurinoma of the acoustic nerve
  • schwannoma of the acoustic nerve
  • vestibular schwannoma
  • neurofibroma of the acoustic nerve

Disorder Subdivisions

  • None

General Discussion

An acoustic neuroma, also known as a vestibular schwannoma, is a rare benign (non-cancerous) growth that develops on the eighth cranial nerve. This nerve runs from the inner ear to the brain and is responsible for hearing and balance (equilibrium). There is no standard or typical pattern of symptom development, although hearing loss in one ear (unilateral) is the initial symptom in approximately 90 percent of cases. Additional findings include ringing in the ears (tinnitus) and dizziness. The symptoms of an acoustic neuroma occur from the tumor pressing against the eighth cranial nerve and disrupting its ability to transmit nerve signals to the brain. An acoustic neuroma is not cancerous (malignant); it does not spread to other parts of the body. The reason an acoustic neuroma forms is unknown.

Resources

Vestibular Disorders Association

PO Box 13305

Portland, OR 97208-4467

USA

Tel: (503)229-7705

Fax: (503)229-8064

Tel: (800)837-8428

Email: veda@vestibular.org

Internet: http://www.vestibular.org



Children's Tumor Foundation

95 Pine Street

16th Floor

New York, NY 10005-4002

Tel: (212)344-6633

Fax: (212)747-0004

Tel: (800)323-7938

TDD: (212)344-6633

Email: info@ctf.org

Internet: http://www.ctf.org/



American Tinnitus Association

522 S.W. Fifth Avenue Suite 825

Portland, OR 97207

United States

Tel: (503)248-9985

Fax: (503)248-0024

Tel: (800)634-8978

Email: tinnitus@ata.org

Internet: http://www.ata.org



Hearing Health Foundation

363 Seventh Avenue, 10th Floor

New York, NY 10016-3904

United States

Tel: (212)257-6140

Fax: (212)257-6139

Tel: (866)454-3924

TDD: (888)435-6104

Email: info@hearinghealthfoundation.org

Internet: http://hearinghealthfoundation.org/home



Acoustic Neuroma Association

600 Peachtree Parkway

Suite 108

Cumming, GA 30014

USA

Tel: (770)205-8211

Fax: (770)205-0239

Tel: (877)200-8211

Email: info@anausa.org

Internet: http://www.anausa.org



Alexander Graham Bell Association for the Deaf and Hard of Hearing

3417 Volta Place NW

Washington, DC 20007-2778

United States

Tel: (202)337-5220

Fax: (202)337-8314

Tel: (866)337-5220

TDD: (202)337-5221

Email: info@agbell.org

Internet: http://www.agbell.org



Better Hearing Institute

1444 I Street NW

Suite 700

Washington, DC 20005

United States

Tel: (202)449-1100

Fax: (703)684-6048

Tel: (800)327-9355

Email: mail@betterhearing.org

Internet: http://www.betterhearing.org



NIH/National Institute on Deafness and Other Communication Disorders

31 Center Drive, MSC 2320

Communication Avenue

Bethesda, MD 20892-3456

Tel: (301)402-0900

Fax: (301)907-8830

Tel: (800)241-1044

TDD: (800)241-1105

Email: nidcdinfo@nidcd.nih.gov

Internet: http://www.nidcd.nih.gov



Acoustic Neuroma Association of Canada

PO Box 193

Buckthorn, Ontario, KOL 1JO

Canada

Tel: 8005612622

Email: info@anac.ca

Internet: http://www.anac.ca



British Acoustic Neuroma Association

Oak House B

Ransom Wood Business Park

Southwell Road West

Mansfield

Nottinghamshire, NG21 0HJ

United Kingdom

Tel: 01623632143

Fax: 01632635313

Tel: 08006523143

Email: admin@bana-uk.com

Internet: http://www.bana-uk.com



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/



Madisons Foundation

PO Box 241956

Los Angeles, CA 90024

Tel: (310)264-0826

Fax: (310)264-4766

Email: getinfo@madisonsfoundation.org

Internet: http://www.madisonsfoundation.org



American Academy of Audiology

11730 Plaza America Drive, Suite 300

Reston, VA 20190

Tel: (703)790-8466

Fax: (703)790-8631

Tel: (800)222-2336

Email: infoaud@audiology.org

Internet: http://www.audiology.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  2/7/2013

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