National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Encephalitis, Rasmussen's is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
- Chronic Encephalitis and Epilepsy
- Chronic Localized (Focal) Encephalitis
- Epilepsy, Hemiplegia and Mental Retardation
- Rasmussen's Syndrome
Rasmussen's encephalitis is a rare disorder of the central nervous system characterized by chronic inflammation (encephalitis) of one hemisphere of the brain. As a result, the patient undergoes frequent episodes of uncontrolled electrical disturbances in the brain that cause convulsive seizures (epilepsy). Symptoms, including paralysis of one side of the body (hemiparesis) and mental retardation usually progress over a period of a year or more. Although the exact cause of this disorder is not known, it is thought to be an autoimmune disease resulting from the presence in the brain of foreign immune system cells that cause the inflammation and the brain damage.
It occurs mostly, but not only, in children under the age of ten years, and the course of the disease is most severe during the first 8 to 12 months. After the peak response is reached, the progression of this disorder appears to stop and the patient is left with neurological deficits.
1660 L Street, NW, Suite 301
Washington, DC 20036
Center for Disease Control and Prevention
1600 Clifton Road NE
Atlanta, GA 30333
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Rasmussen's Syndrome and Hemispherectomy Support Network
8235 Lethbridge Road
Millersville, MD 21108
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
7B Saville Street
North Yorkshire, YO17 7LL
Tel: +44 (0) 1653 699 599
Fax: +44 (0) 1653 604 369
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
PO Box 241956
Los Angeles, CA 90024
P.O. Box 1239
Aledo, TX 76008
RE Children's Project, LLC
79 Christie Hill Road
Darien, CT 06820
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to MyD-H, the Dartmouth-Hitchcock patient portal. You must be a registered MyD-H user for the Lebanon, Manchester, or Nashua locations to access this site.
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email email@example.com
Last Updated: 4/10/2009
Copyright 1987, 1989, 1994, 1995, 1997, 1998, 2006, 2009 National Organization for Rare Disorders, Inc.
Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.