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Status Epilepticus

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Status Epilepticus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Convulsions
  • Seizures

Disorder Subdivisions

  • Grand Mal Epilepsy
  • Major Epilepsy
  • Status Epilepticus
  • Jacksonian Epilepsy
  • Focal Epilepsy
  • Myoclonic Progressice Familial Epilepsy
  • Unverricht Syndrome
  • Lundborg-Unverricht Disease
  • Unverricht-Lundborg-Laf Disease
  • Petit Mal Epilepsy
  • Minor Epilepsy
  • Pyknoepilepsy
  • Akinetic Seizure
  • Myoclonic Seizure
  • Myoclonic Astatic Petit Mal Epilepsy
  • Petit Mal Variant
  • Febrile Seizures
  • Psychomotor Epilepsy
  • Temporal Lobe Epilepsy
  • Psychomotor Equivalent Epilepsy
  • Psychomotor Convulsion
  • Epilepsia Procursiva
  • Abdominal Epilepsy

General Discussion

Status epilepticus (SE) is considered a neurological emergency. Left untreated (or undertreated), prolonged seizures can cause permanent neurological injury or death. Rapid treatment must be initiated. If initial agents fail, it may be necessary to induce an iatrogenic coma. In any case, the person in status epilepticus must be closely watched, and often requires continuous EEG in order to confirm that the seizures have stopped not only clinically but electrically as well.

Resources

March of Dimes Birth Defects Foundation

1275 Mamaroneck Avenue

White Plains, NY 10605

Tel: (914)997-4488

Fax: (914)997-4763

Tel: (888)663-4637

Email: Askus@marchofdimes.com

Internet: http://www.marchofdimes.com



Epilepsy Foundation

8301 Professional Place

Landover, MD 20785-7223

Tel: (866)330-2718

Fax: (877)687-4878

Tel: (800)332-1000

TDD: (800)332-2070

Email: ContactUs@efa.org

Internet: http://www.epilepsyfoundation.org



PHP - Parents Helping Parents, Inc.

Sobrato Center For Nonprofits San Jose

1400 Parkmoor Avenue,

Suite 100

Santa Clara, CA 95126

USA

Tel: (408)727-5775

Fax: (408)286-1116

Tel: (866)747-4040

Email: info@php.com

Internet: http://www.php.com



NIH/National Institute of Neurological Disorders and Stroke

P.O. Box 5801

Bethesda, MD 20824

Tel: (301)496-5751

Fax: (301)402-2186

Tel: (800)352-9424

TDD: (301)468-5981

Internet: http://www.ninds.nih.gov/



AED Pregnancy Registry - Massachusetts General Hospital

121 Innerbelt Road, Room 220

Somerville, MA 02143

Tel: (617)724-9550

Fax: (617)724-8307

Tel: (888)233-2334

Email: holmes.lewis@mgh.harvard.edu

Internet: http://www.aedpregnancyregistry.org



American Epilepsy Society

342 North Main Street

West Hartford, CT 06117-2507

Tel: (860)586-7505

Fax: (860)586-7550

Email: khucks@aesnet.org

Internet: http://www.aesnet.org



Epilepsy Canada

2900 John St., Suite 402

Markham

Ontario, L3R 5G3

Canada

Fax: 9055139461

Tel: 8777340873

Internet: http://www.epilepsy.ca



Organisation For Anti-Convulsant Syndrome

131 Summertrees Road

Ellesmere Port

Cheshire, CH66 2BE

United Kingdom

Tel: 01513565949

Email: enquiries.oacs@gmail.com

Internet: http://www.oacs-uk.co.uk/



New Horizons Un-Limited, Inc.

811 East Wisconsin Ave

P.O. Box 510034

Milwaukee, WI 53203

USA

Tel: (414)299-0124

Fax: (414)347-1977

Email: horizons@new-horizons.org

Internet: http://www.new-horizons.org



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/



Dravet.org

P.O. Box 797

Deale, MD 20751

USA

Tel: (443)607-8267

Email: info@Dravet.org

Internet: http://www.dravet.org



LGS Foundation, Inc.

192 Lexington Avenue

New York, NY 10016

Tel: (718)374-3800

Email: christina@lgsfoundation.org

Internet: http://www.lgsfoundation.org



Matthew's Friends

St. Piers Lane

Lingfield

Surrey, RH7 6PW

United Kingdom

Tel: 01342836571

Fax: 07884054811

Tel: 07884054811

Email: enq@matthewsfriends.org

Internet: http://www.matthewsfriends.org



Child Neurology Foundation

2000 West 98th Street

Bloomington, MN 55431

USA

Tel: (952)641-6100

Fax: (952)881-6276

Tel: (877)263-5430

Email: jstone@childneurologyfoundation.org

Internet: http://www.childneurologyfoundation.org



CURE: Citizens United for Research in Epilepsy

223 W. Erie

Suite 2SW

Chicago, IL 60654

Tel: (312)765-7118

Fax: (312)255-1801

Tel: (800)765-7118

Email: info@CUREepilepsy.org

Internet: http://www.CUREepilepsy.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to MyD-H, the Dartmouth-Hitchcock patient portal. You must be a registered MyD-H user for the Lebanon, Manchester, or Nashua locations to access this site.

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  1/3/2007

Copyright  1985, 1989, 1990, 1991, 1992 1992, 1993, 1994, 1995, 1996, 1997, 1998, 1999, 2000, 2002, 2007 National Organization for Rare Disorders, Inc.

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