National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Dermatitis Herpetiformis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Dermatitis herpetiformis, also known as Duhring disease, is a rare, chronic, skin disorder characterized by the presence of groups of severely itchy (pruritic) blisters and raised skin lesions (papules). These are more common on the knees, elbows, buttocks and shoulder blades. The exact cause of this disease is not known although it is frequently associated with the inability to digest gluten (gluten sensitive enteropathy [GSE] or celiac sprue).
Australasian Blistering Diseases Foundation
- St. George Hospital
- Department of Dermatology
- Sydney, NSW 2217
- Tel: 02 9113 2543
- Fax: 02 9113 2886
- Email: email@example.com
- Website: http://www.blisters.org.au/
Coeliac Society of Australia Inc.
- Suite 1, 41 - 45 Pacific Highway
- Waitara, NSW 2077
- Tel: 294875088
- Fax: 294875177
- Tel: 1800458836
- Email: firstname.lastname@example.org
- Website: http://www.coeliacsociety.com.au
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
Gluten Intolerance Group of North America
- 31214 124th Ave SE
- Auburn, WA 98092
- Tel: (253)833-6655
- Fax: (253)833-6675
- Email: email@example.com
- Website: http://www.gluten.net
NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
- Information Clearinghouse
- One AMS Circle
- Bethesda, MD 20892-3675
- Tel: (301)495-4484
- Fax: (301)718-6366
- Tel: (877)226-4267
- Email: NIAMSinfo@mail.nih.gov
- Website: http://www.niams.nih.gov/
National Foundation for Celiac Awareness
- P.O. Box 544
- 224 South Maple Street
- Ambler, PA 19002
- Tel: (215)325-1306
- Fax: (215)643-1707
- Email: firstname.lastname@example.org
- Website: http://www.CeliacCentral.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email email@example.com
Last Updated: 1/6/1970
Copyright 2005 National Organization for Rare Disorders, Inc.
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