National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Dercum's Disease is not the name you expected.
Dercum's disease is an extremely rare disorder characterized by multiple, painful growths consisting of fatty tissue (lipomas). These growths mainly occur on the trunk, the upper arms and upper legs and are found just below the skin (subcutaneously). Pain associated with Dercum's disease can often be severe. Pain may be caused by these growths pressing on nearby nerves. Dercum's disease mainly occurs in adults and more women are affected than men. In some cases, affected individuals may also experience weight gain, depression, lethargy, and/or confusion. The exact cause of Dercum's disease is unknown.
American Chronic Pain Association
- P.O. Box 850
- Rocklin, CA 95677
- Tel: (916)632-0922
- Fax: (916)652-8190
- Tel: (800)533-3231
- Email: ACPA@theacpa.org
- Website: http://www.theacpa.org
- PO Box 350
- Somis, CA 93066
- Tel: (805)386-3125
- Email: firstname.lastname@example.org
- Website: http://www.dercum.org
Fat Disorders Research Society, Inc.
- 1 Little West 12th Street
- New York, NY 10014
- Tel: 203-769-1267
- Email: email@example.com
- Website: http://www.fatdisorders.org
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
NIH/National Institute of Diabetes, Digestive & Kidney Diseases
- Office of Communications & Public Liaison
- Bldg 31, Rm 9A06
- Bethesda, MD 20892-2560
- Tel: (301)496-3583
- Email: NDDIC@info.niddk.nih.gov
- Website: http://www2.niddk.nih.gov/
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 7/30/2015
Copyright 2012 National Organization for Rare Disorders, Inc.
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