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Macular Degeneration

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Macular Degeneration is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Foveal Dystrophy, Progressive
  • Macula Lutea, degeneration
  • Macular Dystrophy
  • Tapetoretinal Degeneration

Disorder Subdivisions

  • Behr 1
  • Behr 2
  • Adult Macula Lutea Retinae Degeneration
  • Presenile Macula Lutea Retinae Degeneration
  • Stargardt's Disease (STGD)
  • Juvenile Macular Degeneration
  • Macular Degeneration, Senile
  • Macular Degeneration, Disciform

General Discussion

Macular degeneration is a degenerative disease affecting the macula or center of the retina of the eye. It results in progressive loss of central vision. Occurring most often among older people, it is the most common cause of vision loss in people over age 55. It is believed that both genetic and environmental factors influence this disease.

Resources

Lighthouse International

111 E 59th St

New York, NY 10022-1202

Tel: (800)829-0500

Email: info@lighthouse.org

Internet: http://www.lighthouse.org



American Foundation for the Blind

2 Penn Plaza

Suite 1102

New York, NY 10121

Tel: (212)502-7600

Fax: (888)545-8331

Tel: (800)232-5463

TDD: (212)502-7662

Email: afbinfo@afb.net

Internet: http://www.afb.org



American Council of the Blind

2200 Wilson Boulevard

Suite 650

Arlington, VA 22201

Tel: (202)467-5081

Fax: (202)465-5085

Tel: (800)424-8666

Email: mailman@acb.org

Internet: http://www.acb.org/



Association for Macular Diseases, Inc.

210 E. 64th St.

8th Floor

New York, NY 10065

Tel: (212)605-3719

Fax: (212)605-3795

Email: association@retinal-research.org

Internet: http://www.macula.org/



NIH/National Eye Institute

31 Center Dr

MSC 2510

Bethesda, MD 20892-2510

United States

Tel: (301)496-5248

Fax: (301)402-1065

Email: 2020@nei.nih.gov

Internet: http://www.nei.nih.gov/



American Health Assistance Foundation

22512 Gateway Center Drive

Clarksburg, MD 20871

USA

Fax: (301)948-4403

Tel: (800)437-2423

Email: info@ahaf.org

Internet: http://www.ahaf.org



Eye Cancer Foundation

115 East 61st Street, Suite 5B

New York, NY 10021

Tel: (212)832-7297

Fax: (212)888-4030

Email: contactus@eyecarefoundation.org

Internet: http://www.eyecarefoundation.org



MD Support - The Eyes of the Macular Degeneration Community

3600 Blue Ridge Blvd

Grandview, MO 64030

USA

Tel: (816)761-7080

Fax: (816)761-7080

Email: director@mdsupport.org

Internet: http://www.mdsupport.org



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/



Foundation Fighting Blindness (Canada)

890 Yonge Street, 12th Floor

Toronto, Ontario, M4W 3P4

Canada

Tel: 4163604200

Fax: 4163600060

Tel: 8004613331

Email: info@ffb.ca

Internet: http://www.ffb.ca



Macular Disease Society

PO Box 1870

Andover, SP10 9AD

United Kingdom

Tel: 01264350551

Fax: 01264350558

Email: info@macularsociety.org

Internet: http://www.macularsociety.org/



Retina International

Ausstellungsstrasse 36

CH-8005

Zürich,

Switzerland

Tel: 410444441077

Fax: 410444441070

Email: christina.fasser@retina-international.org

Internet: http://www.retina-international.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to MyD-H, the Dartmouth-Hitchcock patient portal. You must be a registered MyD-H user for the Lebanon, Manchester, or Nashua locations to access this site.

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  5/7/2008

Copyright  1986, 1987, 1990, 1996, 1997, 1998, 1999, 2000, 2004 National Organization for Rare Disorders, Inc.

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