Cholangiocarcinoma

National Organization for Rare Disorders, Inc.

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Important
It is possible that the main title of the report Cholangiocarcinoma is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • bile duct adenocarcinoma
  • biliary tract cancer

Disorder Subdivisions

  • None

General Discussion

Introduction

Cholangiocarcinomas are cancers that arise from the cells lining the bile duct. They are grouped according to the location from which they arise as intrahepatic (arising from the bile ducts inside the liver) perihilar (arising from the bile ducts where they exit the liver) or distal (arising from the bile ducts outside the liver). Gallbladder cancers are also biliary tract cancers, but arise from the cells lining the inside of the gallbladder. More than 95% of tumors arising from the biliary tract are a type of cancer called adenocarcinomas[1]. The majority of patients with bile duct cancers are diagnosed when the cancer is far too advanced to be removed by surgery. In some patients, even if the cancer cannot be removed by surgery, an operation may be needed to relieve jaundice or blockage of the stomach outlet[2]. In patients in whom the cancer is diagnosed at an early stage where surgery is possible, complex operating techniques are often required and surgery should be performed by a specialist surgeon with expertise and experience in dealing with patients with bile duct cancers[3].

Supporting Organizations

American Cancer Society, Inc.

250 Williams NW St
Ste 6000
Atlanta, GA 30303
USA
Tel: (404)320-3333
Tel: (800)227-2345
Website: http://www.cancer.org

Cholangiocarcinoma Foundation

5526 West 13400 South, #510
Salt Lake City, UT 84096
Tel: (801)999-0455
Email: info@cholangiocarcinoma.org
Website: http://www.cholangiocarcinoma.org

National Cancer Institute

6116 Executive Blvd Suite 300
Bethesda, MD 20892-8322
USA
Tel: (301)435-3848
Tel: (800)422-6237
Email: cancergovstaff@mail.nih.gov
Website: http://www.cancer.gov

National Coalition for Cancer Survivorship

1010 Wayne Avenue
7th Floor
Silver Spring, MD 20910
Tel: (301)650-9127
Fax: (301)565-9670
Tel: (888)650-9127
Email: info@canceradvocacy.org
Website: http://www.canceradvocacy.org/

TargetCancer Foundation

955 Massachusetts Avenue, #343
Cambridge, MA 02139
USA
Tel: 617-765-4881
Email: info@targetcancerfoundation.org
Website: http://www.targetcancerfoundation.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  1/4/1970
Copyright  2014 National Organization for Rare Disorders, Inc.