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Sudden Unexplained Death in Childhood

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Sudden Unexplained Death in Childhood is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • SUDC

Disorder Subdivisions

  • None

General Discussion

Sudden unexplained death in childhood (SUDC) is defined as the sudden death of a child greater than one year of age that remains unexplained after a thorough case investigation, including performance of a complete autopsy, examination of the death scene, and review of the clinical history.



SUDC deaths have occurred at the following sites:



Death at home, history provided: 79%

Crib or bassinet: 54%

Adult bed: 36%



The placed and found positions were as follows:



Placed supine, side, prone*: 10%, 2%, 3%

Found prone: 89%

Found face position: down, side: 10%, 8%

Co-sleeping, sweating when found: 3%, 1%



*applies only to youngest children

Resources

First Candle-SIDS Alliance

1314 Bedford Avenue

Suite 210

Baltimore, MD 21208

Tel: (800)221-7437

Email: info@firstcandle.org

Internet: http://www.firstcandle.org



National Sudden and Unexpected Infant/Child Death Resource Center

2115 Wisconsin Avenue, NW

Suite 601

Washington, DC 20007

Tel: (202)687-7466

Fax: (202)784-9777

Tel: (866)866-7437

Email: info@sidscenter.org

Internet: http://www.sidscenter.org



NIH/National Institute of Neurological Disorders and Stroke

P.O. Box 5801

Bethesda, MD 20824

Tel: (301)496-5751

Fax: (301)402-2186

Tel: (800)352-9424

TDD: (301)468-5981

Internet: http://www.ninds.nih.gov/



SIDS Educational Services, Inc.

PO Box 2426

Hyattsville, MD 20784-0426

Tel: (301)322-2620

Fax: (301)322-9822

Email: sidses@aol.com

Internet: http://www.sidssurvivalguide.org



NIH/National Institute of Child Health and Human Development

31 Center Dr

Building 31, Room 2A32

MSC2425

Bethesda, MD 20892

Fax: (866)760-5947

Tel: (800)370-2943

TDD: (888)320-6942

Email: NICHDInformationResourceCenter@mail.nih.gov

Internet: http://www.nichd.nih.gov/



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/



CJ Foundation for SIDS, Inc.

HUMC: WFAN Pediatric Center

30 Prospect Avenue

Hackensack, NJ 07601

Tel: (551)996-5301

Fax: (551)996-5326

Tel: (888)825-7437

Email: info@cjsids.org

Internet: http://www.cjsids.org



Sudden Unexplained Death In Childhood Program

c/o CJ Foundation for SIDS

The Don Imus WFAN Pediatric Center

30 Prospect Ave.

Hackensack, NJ 07601

Tel: (201)996-5080

Fax: (201)996-5326

Tel: (800)620-7832

Email: info@sudc.org

Internet: http://www.sudc.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  4/28/2010

Copyright  2010 National Organization for Rare Disorders, Inc.

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