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Eosinophilic Esophagitis

National Organization for Rare Disorders, Inc.

Important

It is possible that the main title of the report Eosinophilic Esophagitis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • allergic esophagitis

Disorder Subdivisions

  • atopic and non-atopic
  • proton pump inhibitor (PPI) responsive and non-responsive

General Discussion

Eosinophilic esophagitis (EoE) is a chronic disorder of the digestive system in which large numbers of a particular type of white blood cell called eosinophils are present in the esophagus. The esophagus is the tube that carries food from the mouth to the stomach. Eosinophils are an important part of the immune system and play a role in immune regulation and fighting certain infection. This condition is characterized by vomiting, stomach or chest pain, failure to thrive (particularly in children), difficulty swallowing, and food getting stuck in the throat.

Resources

Oley Foundation

214 Hun Memorial MC-28

Albany Medical Center

Albany, NY 12208-3478

USA

Tel: (518)262-5079

Fax: (518)262-5528

Tel: (800)776-6539

Email: dahlr@mail.amc.edu

Internet: http://www.oley.org



Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

TDD: (888)205-3223

Internet: http://rarediseases.info.nih.gov/GARD/



Campaign Urging Research for Eosinophilic Disease (CURED)

PO Box 32

Lincolnshire, IL 60069

Tel: (847)361-3292

Email: ellyn@curedfoundation.org

Internet: http://www.curedfoundation.org



Cincinnati Center for Eosinophilic Disorders

Cincinnati Children's Hospital Medical Center

3333 Burnet Avenue

MLC 2010

Cincinnati, OH 45229-3039

Tel: (513)636-2233

Fax: (513)636-9069

Tel: (800)344-2462

TDD: (513)636-4900

Email: cced@cchmc.org

Internet: http://www.cincinnatichildrens.org/eosinophils



American Partnership for Eosinophilic Disorders

PO Box 29545

Atlanta, GA 30359

Tel: (713)493-7749

Fax: (713)493-7749

Internet: http://www.apfed.org



For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  3/8/2012

Copyright  2006, 2009, 2012 National Organization for Rare Disorders, Inc.

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