National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Syringobulbia is not the name you expected.
Syringobulbia is a neurological disorder characterized by a fluid-filled cavity (syrinx) within the spinal cord that extends to involve the brainstem (medulla). It usually occurs as a slit-like gap within the lower brainstem that may affect one or more of the cranial nerves, causing facial palsies of various kinds. In addition, sensory and motor nerve pathways may be affected by compression and/or interruption. This disorder is intimately associated with syringomyelia, in which the syrinx is limited to the spinal cord, and to the Chiari I malformation.
American Spinal Injury Association
- 2020 Peachtree Road NW
- Atlanta, GA 30309
- Tel: (404)355-9772
- Fax: (404)355-1826
- Email: ASIA_Office@shepherd.org
- Website: http://www.asia-spinalinjury.org/
American Syringomyelia & Chiari Alliance Project, Inc.
- P.O. Box 1586
- Longview, TX 75606-1586
- Tel: (903)236-7079
- Fax: (903)757-7456
- Tel: (800)272-7282
- Email: firstname.lastname@example.org
- Website: http://www.asap.org
Christopher S. Burton Syringomyelia Foundation, Inc.
- P.O. Box 100335
- Fort Lauderdale, FL 33310-0335
- Tel: (954)727-5137
- Fax: (954)636-2409
- Email: email@example.com
- Website: http://www.thesmfoundation.org
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
NIH/National Institute of Neurological Disorders and Stroke
- P.O. Box 5801
- Bethesda, MD 20824
- Tel: (301)496-5751
- Fax: (301)402-2186
- Tel: (800)352-9424
- Website: http://www.ninds.nih.gov/
National Spinal Cord Injury Association
- 75-20 Astoria Blvd
- Jackson Heights, NY 11370
- Tel: (718)803-3782
- Tel: (800)962-9629
- Email: firstname.lastname@example.org
- Website: http://www.spinalcord.org
World Arnold Chiari Malformation Association
- 31 Newtown Woods Road
- Newtown Square, PA 19073
- Tel: (610)353-4737
- Email: email@example.com
- Website: http://www.wacma.com
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 9/23/2007
Copyright 2007 National Organization for Rare Disorders, Inc.
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