Sudden Unexplained Death in Childhood

National Organization for Rare Disorders, Inc.

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It is possible that the main title of the report Sudden Unexplained Death in Childhood is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Sudden unexplained death in childhood (SUDC) is defined as the sudden death of a child greater than one year of age that remains unexplained after a thorough case investigation, including performance of a complete autopsy, examination of the death scene, and review of the clinical history.

SUDC deaths have occurred at the following sites:* Death at home, history provided: 79%* Crib or bassinet: 54%* Adult bed: 36%The placed and found positions were as follows:* Placed supine, side, prone*: 10%, 2%, 3%* Found prone: 89%* Found face position: down, side: 10%, 8%* Co-sleeping, sweating when found: 3%, 1%*applies only to youngest children

Supporting Organizations

CJ Foundation for SIDS, Inc.

HUMC: WFAN Pediatric Center
30 Prospect Avenue
Hackensack, NJ 07601
Tel: 551-996-5111
Fax: 551-996-5326
Tel: 888-8CJ-SIDS

First Candle-SIDS Alliance

2105 Laurel Bush Road
Suite 201
Bel Air, MD 21015
Tel: (443)640-1049
Tel: (800)221-7437

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311

NIH/National Institute of Child Health and Human Development

31 Center Dr
Building 31, Room 2A32
Bethesda, MD 20892
Fax: (866)760-5947
Tel: (800)370-2943

NIH/National Institute of Neurological Disorders and Stroke

P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424

National Sudden and Unexpected Infant/Child Death Resource Center

2115 Wisconsin Avenue, NW
Suite 601
Washington, DC 20007
Tel: (202)687-7466
Fax: (202)784-9777
Tel: (866)866-7437

SIDS Educational Services, Inc.

PO Box 2426
Hyattsville, MD 20784-0426
Tel: (301)322-2620
Fax: (301)322-9822

Sudden Unexplained Death In Childhood Program

The SUDC Foundation
549 Pompton Avenue, Suite 197
Cedar Grove, NJ 07009
Tel: 973-239-4849
Fax: 973-559-6191
Tel: (800) 620-SUDC

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

Last Updated:  4/28/2010
Copyright  2010 National Organization for Rare Disorders, Inc.