Sjögren Syndrome

National Organization for Rare Disorders, Inc.

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Important
It is possible that the main title of the report Sjögren Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Dacryosialoadenopathia atrophicans
  • Gougerot-Houwer-Sjogren
  • Gougerot-Sjogren
  • Keratoconjunctivitis Sicca
  • Keratoconjunctivitis sicca-xerostomia
  • Secreto-inhibitor-xerodermostenosis
  • Sicca Syndrome

Disorder Subdivisions

  • None

General Discussion

Sjögren syndrome is an autoimmune disorder characterized by degeneration of the mucus-secreting glands, particularly the tear ducts of the eyes (lacrimal) and saliva glands of the mouth. Autoimmune disorders are caused when the body's natural defenses (antibodies, lymphocytes, etc.) against invading organisms suddenly begin to attack healthy tissue. Sjögren syndrome is also associated with inflammatory disorders such as arthritis or lupus.

Supporting Organizations

American Autoimmune & Related Diseases

22100 Gratiot Ave.
Eastpointe, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Website: http://www.aarda.org/

Arthritis Foundation

1330 West Peachtree Street, Suite 100
Atlanta, GA 30309
USA
Tel: (404)872-7100
Tel: (800)283-7800
Email: arthritisfoundation@arthritis.org
Website: http://www.arthritis.org

AutoImmunity Community

Website: https://www.facebook.com/autoimmunityforum

Autoimmune Information Network, Inc.

PO Box 4121
Brick, NJ 8723
Fax: (732)543-7285
Email: autoimmunehelp@aol.com

Center for Peripheral Neuropathy

University of Chicago
5841 South Maryland Ave, MC 2030
Chicago, IL 60637
Tel: (773)702-5659
Fax: (773)702-5577
Website: http://peripheralneuropathycenter.uchicago.edu/

Cogan's Contact Network

PO Box 145
Freehold, NJ 07728-0145
USA
Tel: (732)409-1031
Website: http://www.coganssyndrome.info/

European Society for Immunodeficiencies

1-3 rue de Chantepoulet
Geneva, CH 1211
Switzerland
Tel: 410229080484
Fax: 41229069140
Email: esid@kenes.com
Website: http://www.esid.org

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
Website: http://rarediseases.info.nih.gov/GARD/

International Painful Bladder Foundation

Burgemeester Le F vre de Montignylaan 73
Rotterdam, 3055 NA
The Netherlands
Tel: 31104613330
Fax: 31104613330
Email: info@painful-bladder.org
Website: http://www.painful-bladder.org

International Scleroderma Network

7455 France Ave So #266
Edina, MN 55435-4702
Tel: (952)583-5735
Tel: (800)564-7099
Email: isn@sclero.org
Website: http://www.sclero.org

Lupus Society of Alberta

Suite 200, 1301 - 8 St. SW
Calgary Alberta, T2R 1B7
Canada
Tel: 4032287956
Fax: 4032287853
Tel: 8882429182
Email: lupuslsa@shaw.ca
Website: http://www.lupus.ab.ca

NIH/National Eye Institute

31 Center Dr
MSC 2510
Bethesda, MD 20892-2510
United States
Tel: (301)496-5248
Fax: (301)402-1065
Email: 2020@nei.nih.gov
Website: http://www.nei.nih.gov/

NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases

Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
Email: NIAMSinfo@mail.nih.gov
Website: http://www.niams.nih.gov/

NIH/National Institute of Dental and Craniofacial Research

Building 31, Room 2C39
31 Center Drive, MSC 2290
Bethesda, MD 20892
USA
Tel: (301)496-4261
Fax: (301)480-4098
Tel: (866)232-4528
Email: nidcrinfo@mail.nih.gov
Website: http://www.nidcr.nih.gov/

National Sjogren's Syndrome

Box 147
Svedala, 233 23
Sweden
Tel: 46255925
Email: harry.paulnitz@telia.com
Website: http://www.sjogrensyndrom.se

Sjogren's Syndrome Foundation, Inc.

6707 Democracy Blvd
Suite 325
Bethesda, MD 20817
Tel: (301)530-4420
Fax: (301)530-4415
Tel: (800)475-6473
Email: tms@sjogrens.org
Website: http://www.sjogrens.org

Sj gren's Syndrome Association

3155 Rue Hochelaga, Suite 001
Quebec, H1W 1G4
Canada
Tel: 5149343666
Fax: 5149341241
Tel: 8779343666
Email: sjogren.montreal@qc.aira.com
Website: http://www.sjogrens.ca/

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  1/4/1970
Copyright  2007 National Organization for Rare Disorders, Inc.